Mercede's Story

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Hello from Cede and Miranda

Hello from Cede and Miranda

A little hello from Cede and Miranda on our hike. These little flowers in their favorite colors, purple for Cede and gold for Miranda, were growing all over the rocks. Miss them.

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Traveling Anniversary

Traveling Anniversary

We are getting close to the one year mark of this traveling journey. And the camper seems to be shrinking. With all of things we are having to get for Atalie for college filling up the floor of their bunk room and maybe just being in this tiny space for so long, it feels smaller and…

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Made It

Made It

We made it to Maine! We have been here for two weeks and are getting settled. Things are falling into place. After I posted about Atalie getting accepted to the University of New England, we received another letter in the mail saying that she was accepted to…

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Daddy

Daddy

My prayers today for all the daddies who have to live without a piece of their heart. And to the one who lives with us… I have seen the tears and the anger and the pain. I know you carry her shoes around in your backpack and so much hurt in your heart. Of the last things Cede did…

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The Fight Began

Four years ago today we began the fight for your life. I thought our love, prayers, and faith…even your amazing faith all by itself, would keep you here with us. But it didn’t and now life is all wrong. I would give anything to have you back, baby…

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Day 177

We left Florida yesterday and are back in NC for a few weeks. Our time in Florida was amazing. The last couple of days we visited Rainbow Springs which, in my opinion looks like heaven. The water is clear and you can see the bottom and the fish and other creatures so clearly. When the sun shines on the rippling water it makes rainbows on the white sand and…

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A Reality Dream

I had a dream about Cede last night…first one in a long time. The ones I’ve had up to this point have been based in reality…she was gone and just visiting me in my dreams. But last night was different. It was what could have been. She was home and her hair was…

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Hat Shop Donations

I just wanted to say thank you to everyone who has helped us with Mercede’s Hat Shohat-shop-donationp! I am amazed! Over $2,400 has been donated so far in two days. Fifty people have shared the link to the go fund me page and the story has been on Channel 64 news, Channel 9 news, Fox 8 and a news column in…

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Thirteenth Birthday

Thirteenth Birthday

Today is your thirteenth birthday and you aren’t here to celebrate with us. That will never stop being terrible. You would be a teenager. I can’t help but wonder what you would be like as a teenager but I hope that in heaven you are…

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Day 173

Day 173

Day 173: I went back and counted. One hundred and seventy-three days we have been on this traveling journey. With five people and a sixty-five pound, long-haired dog living in two hundred and sixty-five square feet. We sweep a lot. We have had a lot of people look at...

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I Remember

She was real. I know she was.

I remember brushing her long brown wavy hair. She could never sit still for long. I had to be quick and the bows never stayed in. She was

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Reread

This showed up on Cede’s page tonight for some reason. I haven’t read it since I wrote this terrible update three years ago. I was right…we have missed her every minute of every day since then and that will never stop. Tonight I reread every comment and I am…

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Beach Trip Before Diagnosis

Found some pictures and a video I hadn’t seen since the day I took them…our last beach trip with Mercede before she was diagnosed…just three weeks before our lives changed forever. Miss you, baby girl…

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Every Beautiful Moment

Every Beautiful Moment

Tonight we drove down the road a mile, maybe, to watch the sunset and take a walk on the beach. This particular place has a path over the dunes that leads to the ocean. There were several deer in the tall grasses watching us as we followed the path winding around the dunes. If you stand at the tallest point on this path, you can see the ocean and the sound. The sunset tonight was…

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Dancing On Bubble Wrap

Spending some time watching Cede and Claire videos and missing them terribly. Thought I would share one with you. This is a favorite memory of mine…dancing on bubble wrap. Cede put on Emily’s shoes so she could pop more bubbles. Miss them with all my heart.

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Lost Count

Lost Count

I have lost count of days…not sure the exact number anymore. We’ve been on our traveling journey for four months. We are settled at the Outer Banks for now. We have been here since before Thanksgiving and can’t seem to leave. It’s beautiful and mostly deserted and very unpredictable. Fires are a frequent occurrence here and last week we lost power after a transformer in the …

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Ten Christmas Days

Ten Christmas Days

Ten Christmas days in her lifetime…all of them were priceless and precious. Her squeals of delight with every gift she opened, from the smallest to the biggest, those still echo in my heart..they always will. She woke up at the crack of dawn…no before that, and went around jumping in…

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Early Christmas Present

I found out that you got an early Christmas present last week. Your good buddy, Oz came to be with you. I know he was happy to see you and I can just imagine the two of you romping all over heaven together. I got to have a special moment with…

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Cute Rufus

Rufus was so cute tonight. When Daddy got home Rufus ran up to his truck and waited for him to open the door, then he put his head on Daddy’s lap for the longest time…his tail just…

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Day 78

This has been a good weekend. Friday evening we drove to the little library a few miles from here, picked out some books and videos. My kids are admittedly a little strange but that’s what I love most about them. They always head to the documentary section of the library first. They chose a few…

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